Tuesday, July 24, 2012

4 Year Cleft Review

Today we met with Paeton's Cleft Palate Team at Children's Hospital to review her progress, assess her current status and discuss further care.  It was an exhausting day...our longest set of appointments yet.  I awoke at 3am and never went back to sleep.  I can never sleep when she has these appointments.  We were out of the house by 6:50am to drop Evan at a friend's house and get to the appointment on time.  We saw doctor's from 8am - 2pm. 
Hanging out...in the waiting room.
Coloring with Mom...in the waiting room.
Testing out the big chair.
The many faces of Paeton Violet.
Working on her letters....in the waiting room.
Playing daddy's IPAD....in the waiting room.
We spent A LOT of time in the waiting room in between appointments.  We saw the speech pathologist, photographer, audiologist, ENT, plastic surgeon, dentist and team psychologist. 

Our best part of today was finding out that Paeton's mouth looks great.  There are no further procedures needed at this time.

Paeton did have a large amount of wax removed from her left ear which she did not like.  She was wrestling from the ENT & Nurse so much, they had to wrap her in a sheet and Jodi had to hold her down.  I stayed at her feet which was probably good because I just stood there crying, listening to her scream.  I am no good in these types of situations....especially pregnant. 

Her left ear is heavily infected and 100% of the ear drum is torn open.  They don't want to operate on her ear till she's 6 years old; they feel as though any earlier could result in a relapse.  So...we wait.  In the interim, we have ear drops to give her and 3 different types of ear plugs to help with bathing and swimming.  

We are so thankful for this amazing team of doctors and specialists that we've been meeting with for 4 years now.  We know God has provided us with a perfectly assigned team and she is in the best of hands. 

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